Cole Moore with one of his sisters, Jasmin Moore. Photo supplied

Cole Moore with one of his sisters, Jasmin Moore. Photo supplied

Vancouver Island man looks to brain surgery for second chance

Fingers crossed that procedure can give Cole Moore a new lease on life after decade of seizures

A Vancouver Island man has reached an important crossroads after a decade of seizures and misdiagnoses.

Last week, Cole Moore underwent brain surgery at Vancouver General Hospital in the hopes of addressing his condition and giving him, as his sister puts it, giving him a chance at a normal life.

For the past five years, Moore’s dad, Brian, has looked after him. Brian’s wife can spell him off, but she also works outside the home, so he does not get out much anymore, and when he started taking care of his son, he was pulled away from his job with a local flooring company for good.

Over this time, he has logged all of his son’s seizures on his phone and says Cole has experienced more than 500.

RELATED: B.C. epilepsy patient refuses to leave Vancouver hospital until needs are met

RELATED: Sooke’s superhero Sifu Moonfist suffering from severe epileptic seizures in Vancouver

When Moore started having seizures almost 10 years ago, the Courtenay man was diagnosed with a condition known as psychogenic non-epileptic seizures. The problems continued, and after five years he was eventually re-diagnosed with epilepsy by a neurologist in Vancouver.

It wasn’t the underlying cause however but rather one of the effects, along with type 1 diabetes. It took several years, but a doctor eventually did a lumbar puncture and found the source of his grand mal seizures, which result in loss of consciousness and violent muscle contractions.

He was given what was a relatively unusual diagnosis called auto-immune encephalitis.

“If somebody had found a diagnosis right away, they could’ve changed things,” says his dad, Brian.

Cole, now 32, needs a lot of medicine to try to control his condition, but as his sister Laurel Gibbons says, he has not been able to work or look after himself. The seizures even affect his ability to be around his children.

“This stuff eats at Cole,” Brian adds. “Trying to get someone to listen to us these five years has been horrible.”

Brian wishes they could spend time as they once did. When he first took Cole in, he bought a couple of new fishing rods for them to use, but they have not been able to go.

The situation has affected his other kids too, who didn’t realize how bad Cole’s condition was at first.

Unfortunately, as Gibbons says, there is little to no support for parents like her dad who have to take care of their kids as adults.

“There is no funding for parents caring for adult children,” she says. “My brother has to be watched 24 hours a day.”

In response, Gibbons has just set up a GoFundMe account to raise money to help her father out in light of all the costs of travel for Cole’s treatment as well as the fact that her dad has not been able to work.

Over the past year or so, Cole has been in an artificial coma a couple of times, while having to go to hospital in Vancouver, his dad alongside for support.

Moore had his first surgery March 2 and his brain is currently being monitored for a week or two for seizures to see where they are happening in the hopes of being able to complete a follow-up surgery.

In the meantime, Brian can only watch, visit his son throughout this ordeal and hope for the best.

“Every day, he wishes he could be better so I could get my life back,” he says. “I just wish he didn’t have to go back through this…. He so wants to get back to having a life.”

The GoFundMe page, “Help support coles second chance at life,” can be found at https://bit.ly/3c3VqvE

For more news from Vancouver Island and beyond delivered daily into your inbox, please click here.



mike.chouinard@comoxvalleyrecord.com

Like us on Facebook and follow us on Twitter.

Courtenayfundraising

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

The District of Sooke has launched a new online community engagement platform, letstalksooke.ca, where residents can share feedback and stay up to date on projects and initiatives that are happening in their community. (Kevin Laird - Sooke News Mirror)
Sooke launches online engagement portal

The District of Sooke has launched a new online community engagement platform… Continue reading

This map shows the pharmacies in Greater Victoria offering the AstraZeneca vaccine for people born in 1981 and earlier. As the map shows, no pharmacies on the Saanich Peninsula are offering the vaccine. (B.C. Government map)
No pharmacies on Saanich Peninsula offering AstraZeneca vaccine

People born in 1981 and earlier eligible for AstraZeneca vaccines

Victoria police are looking for a 38-year-old man after he allegedly assaulted and choked a missing 15-year-old victim in Beacon Hill Park Tuesday night. (Black Press Media file photo)
15-year-old choked in Beacon Hill tent, Victoria police assaulted while intervening

Police searching for 38-year-old suspect, two officers injured in altercation with park residents

West Shore RCMP responded to 164 calls for service the last weekend, including numerous violent assaults. (Black Press Media file photo)
West Shore RCMP responds to 164 calls for service over weekend

Calls included numerous bear spray assaults and domestic violence incidents

A total of 10 flight exposures have affected the Victoria International Airport in April so far, making it the highest monthly total since the start of the pandemic. (Black Press Media file photo)
Victoria hits record-breaking number of monthly COVID-19 flight exposures

As of April 21, 10 flight exposures reported for the month

A large crowd protested against COVID-19 measures at Sunset Beach in Vancouver on Tuesday, April 20, 2021. (Snapchat)
VIDEO: Large, police-patrolled crowds gather at Vancouver beach for COVID protests

Vancouver police said they patrolled the area and monitored all gatherings

(Black Press Media file photo)
POLL: Have rising prices caused you to give up hope of buying a home?

Do you have a spare 50 grand or so kicking around (have… Continue reading

Anyone with information on any of these individuals is asked to call 1-800-222-TIPS (8477) or visit the website victoriacrimestoppers.ca for more information.
Greater Victoria Crime Stoppers wanted list for the week of April 20

Greater Victoria Crime Stoppers is seeking the public’s help in locating the… Continue reading

B.C. Premier John Horgan announces travel restrictions between the province’s regional health authorities at the legislature, April 19, 2021. (B.C. government photo)
B.C. sees 862 more COVID-19 cases Wednesday, seven deaths

Recreational travel restrictions set to begin Friday

B.C. Finance Minister Selina Robinson is photographed following her budget speech in the legislative assembly at the provincial legislature in Victoria, Tuesday, April 20, 2021. THE CANADIAN PRESS/Chad Hipolito
B.C. budget lacks innovative drive, vision during uncertain times, say experts

Finance Minister Selina Robinson’s budget sets out to spend $8.7 billion over three years on infrastructure

Using panels kept cold by water circulating within them, B.C. researchers compared thermal comfort in 60 of the world’s most populous cities, including Toronto. (Lea Ruefenacht)
B.C. researchers use air conditioning to combat spread of COVID particles

Dr. Adam Rysanek and his team have proven a new worthwhile system – a mixture of cooling panels and natural ventilation

Police road checks are coming for people travelling between regions while COVID-19 travel restrictions are in place. (Black Press file photo)
B.C. clarifies COVID-19 travel restrictions, Lower Mainland a single zone

Vehicle checks on highways, at ferry terminals to start Friday

FILE – The Instagram app is shown on an iPhone in Toronto on Monday, March 19, 2018. THE CANADIAN PRESS/Graeme Roy
Judge acquits B.C. teen boy ‘set up’ on sex assault charge based on Instagram messages

The girl and her friends did not have ‘good intentions’ towards accysed

Canadian driver Paul Tracy pulls out of the pits during the morning session at the Molson Indy in Vancouver, B.C., Saturday, July 26, 2003 (CP/Richard Lam)
Vancouver is considering hosting a Formula E race using electric cars

The race would be part of a three-day event focused on climate and sustainability

Most Read